My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Tuesday, March 19, 2013

Day 59

We had a safe trip and are so happy to be home. I missed my children and Elijah really missed his Hopie. I have to admit I am tired but this trip was our best one yet. I really hope and pray that it will be much easier to get to Mayo in Florida between insurance, doctor referrals, and everything else. I need to get some good rest tonight because tomorrow I have to take care of my end of the business and be sure everyone else is doing their part. At least I get to do it in the comfort of my own home and at my own pace.
How long will this journey last? I haven't got a clue, but my illness has taken so much from my family that I hope for the rest of the journey to healing I will be able to be more me and less illness. Our family has always been so close knit and I want that back. So if I have the energy to do things I want to make sure it is the most important things and if I have no energy at all I want to be surrounded by my family enjoying each others company. We can have a blast just sitting and talking or looking at old pictures or making up silly songs together. Our family is truly blessed and I know we always will be, not that we deserve to be blessed no more than we deserve to go through this illness. We are blessed because we are loved by our amazing God. We are blessed because we are promised to be blessed, not without trial as you can see if you have read any of this blog, but beyond measure blessed indeed.
Lots of Love
And Laughter,
Betsy

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