Day 613

I am more than grateful to have an amazing family. God has blessed me with a wonderful husband, Clint, and 3 brilliant beautiful (inside and out) children, Noah, Hope, and Elijah. I never want to take that for granted, or any blessing, gift, or talents God has given us. I still know God is going to heal me in His time so He gets all the glory. When I am healed I strongly desire to continue to rely on God and not get complacent. I want to use my newly found energy from being healed to focus on helping others with illness doctors don't understand, or just don't want to deal with it. I want to lead a full life whether it is planning and setting up events or finding new ways to get researchers working together with doctors and patients.

As of late I feel like I am living a bad country song. Clint had to get new tires because our front tires had no tread and he called them may pop tires, because they could pop at any moment. Two weeks passed and I hit a pothole and popped a brand new tire. The crazy thing is, this is not the first time that has happened, back when we had our minivan Clint bought new tires and a couple of weeks later, on the same road I popped a brand new tire. To be a person who can do very little most of the time, I seem to have a talent for making costly mistakes. With my mom passing and my sweet Noah's fiancee's dad passing the same day, stress has been really high. Our home needs so much tlc and Clint doesn't have the time or tools to take care of every project. He tirelessly works on one thing at a time and then something else falls apart.

I want to try something new here, instead of talking about everything that is wrong, I am going to speak God's promise to us. The bible says we have not because we ask not, or we ask without believing. I ask for complete healing. I ask for financial freedom. I ask for a second vehicle. Most importantly I ask that every soul that reads this will be blessed abundantly and that God will meet you where your needs are!

We are still trying to raise money for a very expensive treatment that will finally address the root of my problem instead of the symptoms. If anyone can help us come up with a challenge or campaign that would raise awareness please let us know. On here, www.honoppeah.com, on facebook, or google+.
Lots of Love and Laughter.
Bets

Day 610

I want to start by apologizing for not writing in here for a while. We lost my mother on August 28th and that same morning our oldest son Noah's fiancée Krystian lost her dad. We were expecting the loss of my mom she was in end stage Parkinson's and Diabetes. Wayne, Krystian's dad was very sudden and unexpected. The night before we were talking about pictures she wanted to take with her dad on her wedding day. 

My nausea and pain have been out of control. I am so excited about the possibility of this new treatment because all along all the doctors said they could do is treat my symptoms and not very well at that. Finally this treatment should work on my underlying AAN or Autonomic Autoimmune Neuropathy. This is what has been systematically shutting down my organs. The muscle is in good shape but my nerves are the problem. This treatment is very expensive and insurance companies don't like to pay for it so I have an ongoing fundraiser at my website www.honopeah.com. There is a PayPal button but if you prefer snail mail the address is on my contact page. 

I have to get well so I can focus on rare or orphan diseases. So many people know they are sick but the doctor try's to convince them that it is in their head. Sure some cases are hypochondria and I know eating disorders are very real, but people who come to the doctor because they can't hold down any food and are in severe pain are told they have an eating disorder and with these symptoms I am sure many people trust their doctor and truly believe they have an eating disorder when a simple gastric emptying test would show a real illness. I used to tell people I couldn't be anorexic because I like to eat too much and could never be bulimic because I couldn't stand the thought of wasting food. Now I don't eat because of the fear that it will magnify my illness. Sometimes I bloat up like I am 6 or 8 months pregnant within 5 minutes of eating or even just drinking something. With that in mind, it makes a very good case for anorexia. When I do eat, I eat as much as I want because I know it is going to come back up which makes a good case for bulimia. I have neither of these, my nerves to and in my stomach and small intestines don't work at all so they are paralyzed. 

I want to thank all of you for reading and supporting me in my fundraiser. If you have any comments or suggestions please let me know. Either on here or my website. My prayers go out to everyone who reads this that God may bless you and meet you where your needs are!

Fundraiser for new treatment

I have set up an on going event that is a fundraiser for a new treatment. Until now all the doctors knew how to do was treat my symptoms. All along I have fought tooth and nail to get help treating the cause of my problem and if this treatment works it works right away. There is an issue with my treatment it costs $20,000.00 per treatment and insurance doesn't like to pay for it but if they see success then they would be more likely to pay for subsequent treatments that I have to have varying from every 2 weeks to every 3 months. There is a PayPal donate button on my website www.honopeah.com. Please share this with anyone you think can help and know that even the smallest donations are so greatly appreciated.