My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Monday, November 24, 2014

Today's IVIG

I am sitting here in Oncology getting my 4th treatment of IVIG and I really hope it is working. I have been having some strange pain in odd places. I really hope that it's because my nerves are waking up. I met a beautiful sweet spirit of a lady today who was here for IV antibiotics for an infection around her heart. It always amazes me how God brings people into your life and I would love it if you would all pray for her.Her name is Ladonnya. I pray that God pours out blessings on her until her cup is overflowing. I have 4 and a half hours to be here and hopefully I can take care of getting our rental car while ours is in the shop from the damage from the tornado.
I feel so blessed and honored to have now 4 amazing children, a wonderful, giving and loving husband, and it doesn't hurt that he is so gorgeous. I also feel blessed that all the people God brings into my life out of nowhere and at times I am a blessing to them, other times they are a blessing to me, but most of the time we are a blessing to each other.

Tuesday, November 18, 2014

Last week

I started my IVIG last week and I haven't been posting in here but have some in my GOFUNDME.  I had my gastric emptying scan last Monday and Started my IVIG Tuesday. The first treatment gave me quite a headache and some strong abdominal pain.  The second treatment on Wednesday gave me a massive 4 day migraine along with a low grade fever. Every time I moved it felt like my brain was rattling around in my head. I couldn't even make sense to myself. So I had to postpone my third treatment to Monday and now I will have one every Monday for the next 5 weeks. I hope and pray this is all worth it.
I do know something worth mentioning, through all I have been through God has used me in many peoples lives. It baffles me and exhilarates me to know that even now God is using me. When people come to me and tell me about something I shared with them and how it changed their lives I am so honored to be the vessel God uses to change lives. My amazing husband has the same gift only to watch God work through him, it's so much more powerful. I am thankful to say God uses our children in many amazing ways. Noah is a full time Youth Minister and soon he will be married to his sweet beautiful fiancee. Hope leads the FCS at school and sometimes feels like she is doing no good. But I see her heart and know she makes a difference wherever she goes. The holidays are coming up and that really brings out Hope and Elijah's giving spirit.
My pain is getting very strong right now but I really hope to keep up my blog better.

Sunday, November 2, 2014

Finally IVIGG treatments

I have finally been approved for my IVIGG treatments. I am not sure what my cost will be but I have to have a gastric emptying study before and after. I will have to go to the hospital 3 days in a row for outpatient IVIGG and then for 5 weeks 1 day a week I will have treatments. I have no idea what my cost will be but the treatments are $20,000.00 a piece, plus my husband will have to take off work to take me to the hospital and from what I understand it takes over 4 hours for each treatment so we may run into lost pay as well, but this is the first promise of help in over 10 years! Anything you can do to help will be greatly appreciated! We hope to start this week and I should know after the first treatment if it helps.