Day 130

I have really been out of sorts this past week. My potassium was 6.2 and they finally checked it again today. Thank God it was 4.2 right where it should be. I still feel miserable and I just lost my reason to. I suppose I am learning every day why doctors don't want anything to do with this dreadful disease. There is no rhyme or reason. Things happen in cycles but not ever the same, one week I will feel great, almost like I am me again. The next 3 I may not be able to get off this couch or even lose chunks of time. My wonderful, amazing husband, Clint, just got home so I am distracted and will try to keep up especially as Jacksonville, Florida approaches.  

Day 123

I go to Dr. Melton tomorrow. Last night was a very long one but they finally approved my IV fluids and for the first time since I have gone off TPN, I woke up and my mouth wasn't cotton dry. I hope I can get some of this excess weight off because it makes me feel miserable, difficult to breathe, high pulse rate and swollen hands are all driving me mad. I really think that having these fluids will help lessen my pain, migraines, bloating, and other symptoms. It would be great if we can get me off of some of these medications.
I have to say I am so excited for my cousin Misty, she had her baby girl, Jaxyn, 6lb 4oz and she looks just like her momma! I wish I could be there to hold her and visit with Misty, I really miss her because she normally comes up several times a year and we go down there but with me being sick and her being pregnant we haven't seen each other. I miss my family that is in Alabama, I know we were there not too long ago for my baby brothers wedding, but I miss them all. I really miss my newest niece Brooke and her momma and dad. Our family is so tight and close knit. We do everything together, but lately it seems like we have been doing nothing together. My sweet baby boy is a man going off to college. My sweet baby girl is a teenager, which is fun when I feel good enough to do things together like shopping or just hanging out.  Elijah, my baby, the last child I will have is 7 and almost as tall as Hope. I know God has a plan to use my illness and my miraculous healing to change so many peoples lives. He already has used it in so many ways. I am just waiting like in Psalms where it says wait for the Lord, be strong and take heart and wait for the Lord. I don't like to wait, who does? But I put this into Gods hands and I struggling but refusing to take it back because His hands are the only place any of this will work. i know this is short, but i will try to be more consistant.

Lots of Love
And Laughter,
Betsy

Still Here

Just wanted to let everyone know I am still here and fighting for my healthcare. I have been really sick plus I had alot of end of the year stuff to do. Hope was amazing in her play on YouTube and Facebook. Noah Graduated Valedictorian, composed the music to the slide show and gave the best speech of the evening which made some teachers upset, but instead of reading words that were basically written for him, he spoke from his heart! It blows my mind how few people know about my illness. I sent Krystian to check Hope out and they gave us a really hard time and finally asked in a not so nice tone, is your mom sick or something? They asked her that after I told them I could not come get her because I was hooked up to my IV medication. People...here's your sign! I need to find someone who knows how to set up and run a fundraiser and even a foundation. I have been sleeping alot and on top of my GP, I had white and green and blisters in my throat and a rash on the outside of my neck but my temp never got above 100. I feel better today but just recently got real nauseated so I am going to go but I hope to get back to writing every day. Several days ago Elijah ask if I was writing in my blog everyday because I was supposed to and that evening I wrote a long emotional blog but I was on my phone and accidentally deleted it and couldn't get it back and by then I was to sick to re-write it so until next time...

Lots of Love
And Laughter,
Betsy

Day 104

Sorry for my absence I haven't been feeling so great, but just now Elijah asked if I had written in my blog lately and when I said no he told me I was supposed to write in it every day. These next few weeks are going to be very busy and I will try to write the best I can. It is late and I am tired so this is all for today but I will be back.