My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Monday, May 20, 2013

Still Here

Just wanted to let everyone know I am still here and fighting for my healthcare. I have been really sick plus I had alot of end of the year stuff to do. Hope was amazing in her play on YouTube and Facebook. Noah Graduated Valedictorian, composed the music to the slide show and gave the best speech of the evening which made some teachers upset, but instead of reading words that were basically written for him, he spoke from his heart! It blows my mind how few people know about my illness. I sent Krystian to check Hope out and they gave us a really hard time and finally asked in a not so nice tone, is your mom sick or something? They asked her that after I told them I could not come get her because I was hooked up to my IV medication. People...here's your sign! I need to find someone who knows how to set up and run a fundraiser and even a foundation. I have been sleeping alot and on top of my GP, I had white and green and blisters in my throat and a rash on the outside of my neck but my temp never got above 100. I feel better today but just recently got real nauseated so I am going to go but I hope to get back to writing every day. Several days ago Elijah ask if I was writing in my blog everyday because I was supposed to and that evening I wrote a long emotional blog but I was on my phone and accidentally deleted it and couldn't get it back and by then I was to sick to re-write it so until next time...

Lots of Love
And Laughter,
Betsy

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