My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Thursday, September 19, 2013

Day 250

I went to the doctor today and got my medication and nutrition taken care of. I will try to go back to the neurologist at Ochsner and see if we can either work with the neurologist at Mayo through peer to peer conversation or do what needs to be done to get me approved to go to Mayo. I am working hard on Hope's party and am unsure how I am going to get everything taken care of in time but I trust God. I got the card stock for her invitations but need a definite answer on the location and still have to get ribbons and jewels for embellishments. I hope we will be able to take care of that this weekend as well as decorations and deciding on food and all that fun stuff! I am glad Clint was off today because my appointment was not put in the system because a new girl was helping when I called. Even though my appointment should have been at 8:30 we had to wait until almost 11:00. I do hate that when we got home I slept most of the day, but Elijah got to spend the day with his daddy so I guess it was worth it. I really hope my meds get sent quickly!

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