My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Thursday, January 24, 2013

Day 5

I have had too much pain today so I won't write much. I got a call from my doctor and I have an appointment at Ochsner for a consult next Tuesday. I really am hopeful he can remove my pacer with all of its components. I also pray he will refer me to a neurology consultant and any other doctor I need to see. If I qualify for IVIG treatments after the first time they can do it in my home but a specialized nurse will have to be here with life support on hand because it is a very dangerous treatment. If if works it may not revive the organs that are already affected but it will keep my body from shutting down any additional organs which would lead to multi visceral transplant if nothing is done to stop it. I count it all blessings that you are taking this journey with me. I hope it truly blesses you in many ways. New Orleans here we come!

Lots of Love
And Laughter,
Betsy

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