This has been a long day. Elijah woke up at 4am and could not breathe and boy did he panic but even after 2 breathing treatments he still couldn't breathe. I thought I was going to have to take him to the ER but after cold air, Vicks, and cupped hand pounding on his back he was finally able to rest. I a slept until 1pm and I am still so tired and weak. I know my family misses me. I know my friends miss me. More than anything I miss me. I am not always so sad but today I am. I feel physically emotionally and spiritually spent. Either my pain meds aren't working correctly or my pain is just more severe. I know my mood is attached to how I feel and I do my best to not let this get me down. But it seems today I just can't shake it. I still haven't heard back from Ochsner but I know the nurse is working hard to coordinate everything. I am going to start a Facebook fundraiser and as soon as I figure out the PayPal button I will put it on here too. If anyone wants to donate before then we have a donation account at Capital One bank, you can go to any branch and ask to donate to the Betsy A Hutson account. I truly appreciate all the prayers going up on my behalf and I know that many of you are deep in the middle of your own burden and so I pray that everyone who reads this will be overtaken by God's blessings. I know without a doubt God is going to heal me in His time and I have been praying specific Bible verses for healing and financial freedom. Our finances are a mess mostly because insurance agreed to pay to send me to the Mayo Clinic and then refused to pay it. Luckily I am now on private insurance and Medicare so that should not be an issue ever again. As of right now my hands are to weak to type anymore so I will catch you in the rerun.
Lots of Love
And Laughter,
Betsy
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Thursday, January 31, 2013
Wednesday, January 30, 2013
Day 11
I am excited that things are progressing so quickly but at the same time a bit on edge. I know God is with me and He will provide for our expenses, but most of all I know He will heal me. I try not to let people see me when I am at my worst because it is hard for me to put someone in that position. It scares me so I can imagine how helpless my family or anyone who happens around at the time must feel. My pain seems to be ever increasing but I try not to take much pain meds because I know my surgery is coming quickly and I want the medication to work then. I have a private sadness in my heart that I have shared only with my husband and a very few close personal friends. I normally have so much to say and this evening I just feel so tired. I need to rest!
Lots of Love
And Laughter,
Betsy
Lots of Love
And Laughter,
Betsy
Tuesday, January 29, 2013
Day 10
Today has given me a renewed hope, and though I am exhausted from the long journey, it was well worth it. We stayed at the hotel connected to Ochsner and though the rooms were small and pricey, they were freshly remolded and comfortable. It was very convenient but I know you are not reading this for my hotel stay. The visit with Dr. Richardson was amazing and as extremely busy as his nurse was she went above and beyond to set up all the appointments I need and my surgery in the same couple of days. My tentative date to return is February 18th. This is the first time ever, since any of my doctor visits, that everybody was in-sync and most attentive to my particular needs. Please pray for a lady named Mary in Port Gibson. We stopped at a convince store there and I could tell she was in distress so I asked. She has had a headache for over a month and she cannot get it to go away. She works 2 jobs and her doctor told her she had to quit one of her jobs so please pray for Gods blessing on her. I have spent the last 2 years with hurry up and wait and to have things happening so quickly is almost overwhelming. We have to raise the money to get there somehow, then get ready for my baby brothers wedding in Alabama, then get ready for Noah's graduation and college. We took Elijah and he was so good. Noah and Hope stayed home to go to school but when we got home this house was immaculate. Things that have been so out of placed and disheveled for so long because I could not take care of it and things I did not even know needed to be done were done in just 2 days along with their schoolwork and everything else they had to do. I have the most amazing family! I know I am so immensely blessed and I hope my words can bless you! I am so happy to take you on this journey with me.
Lots of Love
And Laughter,
Betsy
Lots of Love
And Laughter,
Betsy
Monday, January 28, 2013
Day 9
We are in New Orleans awaiting an appointment in the morning to see if they will be willing and able to help me here. It has been a long day and I am sure tomorrow will be much longer and I really hope it is worth it. I think I have fixed the comment issue and I want to thank everyone for following me on my journey. Of course Elijah and Clint are here with me. Hope and Noah had to stay and go to school. This town is crazy right now with everything they are doing to get ready for the Super Bowl. Well, I need to rest and you need to keep the faith of a child!
Lots of Love
And Laughter,
Betsy
Lots of Love
And Laughter,
Betsy
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