My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Thursday, March 20, 2014

Day 429 part 2

I got to sleep at 4 am and didn't want to get up and go to the doctor but I did and after dropping Hope off at school and Clint at work my doctor called in sick today so I have to wait until tomorrow to see him. The good news is Elijah and I got to spend the morning together in town and even got to go see Amanda's mom. I forgot how week I have been and when we went into Best Buy to look around it hit me and I knew I couldn't collapse in the store and cause all that drama so we found an XBox One set up so I let Elijah play while I sat on the floor in the middle of the isle like an idiot. Then I remembered how hard it is these days to get off the floor. I finally got myself together and we went to the car to sit and listen to some tunes on The Cross on the last day of their spring shareathon. Finally I was able to go get Clint and he brought me home to rest before we went to see the GI doc. That was the most promising visit I have had in a while. He will sign off on my TPN and IV meds as long as the company has certified nutritionists, diations, nurses, and pharmacists. He is also getting me a visit with a really good local neurologist that if he cannot help me he can send me to somebody who can. Baby steps but at this point they are the most beautiful steps I have seen in a while. Hopefully I will sleep tonight and hav a good doctor visit tomorrow. Thank God I have my wonderful husband to take care of me when I need it the most. 
My moms health is not so good so please pray for her. They decided not to do the heart cath today because she didn't have enough blood. 
On a much better note I am so proud of my Noah. He was awarded Freshman Engineer of the Year out of 400 students in the hardest program Tech has to offer! His character and brilliance are true gifts from God! I just have the most amazing family!

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