My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Wednesday, April 2, 2014

Day 441

Sorry I haven't been keeping up. I have been having a rough go at it lately and I am having a hard time trying to come up with something positive to say. I just wanted to let you know I am still here and I truly appreciate your support, prayers, and the time you take to read this. 
The thing is I don't want this to be a sob story, never have. Not a poor me or whatever. This is a journey to the day when by God's will alone I will be healed, but who wants to hear how I can't keep my pain and nausea under control, how I throw up every single day, sometimes up to 8 times a day. Who wants to hear how I am too weak to get up and walk to the bathroom without holding onto the wall, to weak to get up and clean a mess that is driving me insane. 
I'm just so weary. Sinking into a deep dark hole that I can't do anything about. I used to be so vibrant, done so many jobs, cleaned rather I was singing or fussing, put together elaborate parties, had so much fun with my family. I miss me so much. I want to live, really live, not just be. 
So, I think you get the drift. I don't post because I just can't find my sweet sweet spirit that has changed so many peoples lives. People would ask how I was and the response was always with a huge smile, wonderful. Now I dread that question because I just want to scream and cry and say, you really don't want know. Instead I just say ok or not so good. Right now my pain is so strong that it is blurring my vision so I guess I need to stop typing before it turns to jibberish, not that what I am saying is much better. 
Anyway, if I miss some days now you know why. I hope you will stick with me through this journey and I find the poetic voice God blessed me with. 

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