I really hope I am not just writing these words for my own benefit but that every post I make helps someone in some small way. I want more than anything in this world to make a difference, to keep at least some people from pain or give them some hope in their current situation. I began writing this journey because I know the faith of my baby boy does not fall on deaf ears. I can't wait to change the title of my posts from counting down the days until I am healed to counting up the days since I have been healed and share all the amazing things God is doing through us. Stick around if you want to be truly amazed!
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, March 18, 2014
Day 427
Here I am at almost 4am awake and alone with my thoughts and my pain and other lovely symptoms. Even though I am awake I am so weak that I have to hold on to the wall just to make it down the hall to the bathroom. Sometimes I will go 2 or 3 days with little or no sleep, other times I will sleep for that long only waking up a few hours in between. I feel like I am banging my head against a brick wall just trying to find a doctor that will understand and care about my case. Someone that can help me. I know God has a plan, I just wish He would clue me in even just a little bit. This I do know, I am one more day closer to my healing than I was yesterday. It is so humbling and awesome to know that the God that created everything, every universe, knows me and cares for me... Less than a speck of dust in the majesty of it all and He has a plan for me. Healing is only a small part of that plan. I can see a glimpse, fragments of a vision and I know with every fiber of my being that I am His vessel and He is going to do mighty works through my family.
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