This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, March 11, 2014
Day 420 part 2
Positive, yea right, positive pain, positive nausea, positive heartbreak. When the pharmacy who is supposed to know your needs and fill the same thing weekly but can't even get that right because they have to order your meds 2 days after you are out is not cool. My doctor is not equipped to do what the other pharmacy group did for me and this pharmacy says it is all on my doc. I shouldn't have to fight every little thing tooth and nail just to survive. I though Clint taking this new job would resolve a lot of those issues but it has not. I am too weak to fight for myself anymore, hell most of the time I am too weak to get off this stupid couch. I am so over this.
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