This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, March 11, 2014
Day 420
This is another in a stream of seemingly endless rough days. If it's not my nausea controlling me, it's my pain, and if not that my weakness. I don't want this disease to control me. I know God will heal me but until then I don't know what to do. When I started this blog it was all about hope and faith and it seems when I do devote time to it all I do is fuss so I am going to try to stop looking at the negative in all aspects of life. My sweet husband told me that if I devoted as much time and attention to positive things as I did do negative it would be a world of difference. That is who I used to be trusting, caring, finding the good in every situation. I have been having a very difficult time finding the good when I don't have the strength to put a load of clothes on to wash or stand long enough to wash a few dishes. Sometimes laying here on the couch I don't even have the energy to lift my arms. So what do I have? I have a family who adores me and will sit in here with me to watch movies or shows or just talk. I have a wonderful group of friends who uplift me and so many people that pray for me. I truly am blessed. When God heals me it will be not just for me but for all the world to see His mighty power, grace, and love. There is a reason for this time in our lives and I embrace it with the faith of a child!
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