It's been a while

I have been stuck in a holding pattern while my doctors and insurance decide what to do next. I had a really difficult month last month. No matter what i couldn't control my symptoms. Now I am back on an even keel for me anyway. I am waiting on my neurologist now, because insurance will not cover IVIG because even though I had a better quality of life, there was no change in my gastric emptying test. The next thing they are supposed to try is Solu Medrol but it has been months and still waiting.
     I am going to try to start another blog or maybe even a vlog because I cannot work. We have a senior in high school and I am homeschooling our 4th grader. Between the cost of regular family expenses and my medical expenses I have to figure out a way to make money from home. I cannot do a regular at home job because I never know what my body is going to decide to do, so I have to figure out how to make the internet work for me so please pray that I will find a meaningful way to contribute to our family's living expenses.
     Our house desperately needs repair and Clint is working as fast and hard as he can to repair and remodel, but something new always seems to break or pull attention from what needs to be done. Hope is about to turn 18 and I want to try to make her birthday special. She needs a whole lot this year, from a computer and a vehicle for college to simple things like bedding, towels, and the like.
     God has given Clint an amazing mind for business but without capital he cannot do any of it. He intends to remodel this house all by himself and I love the layout and all the little features he wants to do but at the end of the day there is just not enough time or money for him to build our sanctuary. He gives every ounce of himself to a job that should be paying him more because he goes above and beyond in every aspect of his life, but he needs desperately to have time and peace to recharge because I have to deal with being sick all the time, but he has to deal with me being sick, knowing there is nothing he can do for me and that he is going to have to deal with the ramification on the house and the family.
     I really need to be able to contribute, even if it is in some small way to get our family and our remodel back on track. i have been so sick for so long, I don't even remember what it means to feel good. It can get really discouraging for all of us, I truly believe god is going to heal me in His time, I just wish it was sooner rather than later. I will try to keep my blog updated as I am starting a prayer and a spiritual journal. Who knows, maybe I will even be able to get my book published.
     Back to the mountian of laundry and dishes, paperwork and phone calls that won't get done today.
Because I am going downhill fast and when I finally break down and take my medicine I will be no good to anyone.