There is nothing good about gastroparesis. And when you are a foodie like me it really sucks. I love to eat but now if I eat I throw up for hours. That's not the only thing though. I love to cook and bake and come up with new recipes, I even have my own line of cookies. I love planning big events and not only making food that looks decadent but tastes even better. I miss hanging out with my family. I miss living my life while the years go by so fast. Elijah will be 10 in January and he still has complete faith God will heal me and so do I. I know its in His hands but I really hope it's sooner rather than later
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
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