This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Sunday, September 14, 2014
Fundraiser for new treatment
I have set up an on going event that is a fundraiser for a new treatment. Until now all the doctors knew how to do was treat my symptoms. All along I have fought tooth and nail to get help treating the cause of my problem and if this treatment works it works right away. There is an issue with my treatment it costs $20,000.00 per treatment and insurance doesn't like to pay for it but if they see success then they would be more likely to pay for subsequent treatments that I have to have varying from every 2 weeks to every 3 months. There is a PayPal donate button on my website www.honopeah.com. Please share this with anyone you think can help and know that even the smallest donations are so greatly appreciated.
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You should be able to comment now. I think I fixed it, my first blog so bear with me.