I am more than grateful to have an amazing family. God has blessed me with a wonderful husband, Clint, and 3 brilliant beautiful (inside and out) children, Noah, Hope, and Elijah. I never want to take that for granted, or any blessing, gift, or talents God has given us. I still know God is going to heal me in His time so He gets all the glory. When I am healed I strongly desire to continue to rely on God and not get complacent. I want to use my newly found energy from being healed to focus on helping others with illness doctors don't understand, or just don't want to deal with it. I want to lead a full life whether it is planning and setting up events or finding new ways to get researchers working together with doctors and patients.
As of late I feel like I am living a bad country song. Clint had to get new tires because our front tires had no tread and he called them may pop tires, because they could pop at any moment. Two weeks passed and I hit a pothole and popped a brand new tire. The crazy thing is, this is not the first time that has happened, back when we had our minivan Clint bought new tires and a couple of weeks later, on the same road I popped a brand new tire. To be a person who can do very little most of the time, I seem to have a talent for making costly mistakes. With my mom passing and my sweet Noah's fiancee's dad passing the same day, stress has been really high. Our home needs so much tlc and Clint doesn't have the time or tools to take care of every project. He tirelessly works on one thing at a time and then something else falls apart.
I want to try something new here, instead of talking about everything that is wrong, I am going to speak God's promise to us. The bible says we have not because we ask not, or we ask without believing. I ask for complete healing. I ask for financial freedom. I ask for a second vehicle. Most importantly I ask that every soul that reads this will be blessed abundantly and that God will meet you where your needs are!
We are still trying to raise money for a very expensive treatment that will finally address the root of my problem instead of the symptoms. If anyone can help us come up with a challenge or campaign that would raise awareness please let us know. On here, www.honoppeah.com, on facebook, or google+.
Lots of Love and Laughter.
Bets
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
No comments:
Post a Comment
You should be able to comment now. I think I fixed it, my first blog so bear with me.