Day 610

I want to start by apologizing for not writing in here for a while. We lost my mother on August 28th and that same morning our oldest son Noah's fiancée Krystian lost her dad. We were expecting the loss of my mom she was in end stage Parkinson's and Diabetes. Wayne, Krystian's dad was very sudden and unexpected. The night before we were talking about pictures she wanted to take with her dad on her wedding day. 

My nausea and pain have been out of control. I am so excited about the possibility of this new treatment because all along all the doctors said they could do is treat my symptoms and not very well at that. Finally this treatment should work on my underlying AAN or Autonomic Autoimmune Neuropathy. This is what has been systematically shutting down my organs. The muscle is in good shape but my nerves are the problem. This treatment is very expensive and insurance companies don't like to pay for it so I have an ongoing fundraiser at my website www.honopeah.com. There is a PayPal button but if you prefer snail mail the address is on my contact page. 

I have to get well so I can focus on rare or orphan diseases. So many people know they are sick but the doctor try's to convince them that it is in their head. Sure some cases are hypochondria and I know eating disorders are very real, but people who come to the doctor because they can't hold down any food and are in severe pain are told they have an eating disorder and with these symptoms I am sure many people trust their doctor and truly believe they have an eating disorder when a simple gastric emptying test would show a real illness. I used to tell people I couldn't be anorexic because I like to eat too much and could never be bulimic because I couldn't stand the thought of wasting food. Now I don't eat because of the fear that it will magnify my illness. Sometimes I bloat up like I am 6 or 8 months pregnant within 5 minutes of eating or even just drinking something. With that in mind, it makes a very good case for anorexia. When I do eat, I eat as much as I want because I know it is going to come back up which makes a good case for bulimia. I have neither of these, my nerves to and in my stomach and small intestines don't work at all so they are paralyzed. 

I want to thank all of you for reading and supporting me in my fundraiser. If you have any comments or suggestions please let me know. Either on here or my website. My prayers go out to everyone who reads this that God may bless you and meet you where your needs are!