My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Thursday, August 7, 2014

Day 569

My nausea has gotten the best of me today, but I will not let it win. Instead I want to tell you a fun little neuance. My new website www.honopeah.com that I hope to extend to be a place for researchers, doctors, and patients to work together to diagnose and cure rare diseases. Okay so here's the funny part, when my daughter was in prek she wrote honopeah in sharpie on our hall book shelf. I had no idea what that word could possibly mean and when I found out I thought it was the sweetest thing in the world she loved her big brother so much that she combined their names, Hope and Noah the first 2 of hers then his and the second 2 of hers and his thus honopeah was born. I thought of all the websites out there that are so big and catchy so you don't forget them but most of them have no hidden meaning and now you know mine. 
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