This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Saturday, August 2, 2014
Day 564 starving
I have a question for all of those with gastroparesis, Do you feel hungry even though you know if you eat you have to pay ten fold? When I was a teenager I was tiny, I was a dancer and I would often forget to eat but I was never hungry. When I had children I had to set a specific schedule to eat so I didn't forget to feed my children. After that I ate because it was time or something smelled good or I had a craving but I never felt hunger. I now know true hunger. I had been literally starving to death before I got on IV nutrition. I didn't like the weight my IV nutrition added but the doctor said it was a good thing because that means it is working along with proof from my blood work. How do I get rid of this insatiable hunger? Two sips of water and I am barfing my guts out. Sometimes I don't eat for days and I still throw up. Right now I want a big fat juicy burger, some decadent deserts, and icecream. Sometimes my hunger is stronger than my nausea and pain combined. Anybody have any suggestions?
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