This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, January 13, 2015
Still sick, still believing with the #faithofachild
The IVIG treatments helped with my symptoms. I even had several days that I forgot I was sick, I felt so good. But the test results had no change so insurance is not going to approve any more treatments and I know I can't afford $20,000 a treatment. I do feel like this is just one more step to prove that man cannot do anything proof that my healing will be by God alone. Until then I will wait. I have to say I am losing my patience. I do see so much more going on while I wait. I am having a blast helping with my sons upcoming wedding. Noah is doing awesome in biomedical engineering and planning his life with his new family. He is a youth pastor and making strides in making a huge difference in this area. It gives me so much hope and anticipation. God has brought back to the forefront of my mind all the ideas and plans He has given me and let me know they are going to be a reality. Expect to see big things God is doing through our family this year. Stick with me on here and I know you will see more than just one miracle!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment
You should be able to comment now. I think I fixed it, my first blog so bear with me.