The entirety of this blog has been to count down the days until God heals me of an incurable disease, mixed in with tidbits of my life and family, and sometimes a little craziness. This is the 3rd night this week that I haven't been able to sleep at all. When I do sleep it is restles and full of vivid wild dreams. So may changes are happening this year. My sweet, brilliant Noah is getting married this summer and all I want to do is give Krystian the wedding of her dreams! Hope is probably going to a college science or psycology 2 to 3 week course at Tulane this summer. Senior year is right around the corner for her. Elijah is sailing through 3rd grade with flying colors. He loves to tell us how handome and smart and humble he is; that's my stinkerlicious for you!
I am just so ready to feel like myself again before I forget who that is. Either I am so sick I cannot function or I'm havinf crazy siide effects from my medicine that I can't decide if the side effects or the symptoms are worse. I miss laughing, dancing, baking, cooking, playing with my kids; Going on dates with my husband, dates with my kids, or having the best family outings. We can't even travel with the extra load of my TPN and all my meds, not to even mention that money for travel is non existant because it all goes to doctors and bills. I do have to say this, God has always provided for us. We have never had a lack of food, clothing, and essentials. God has been so good to us and I know He will see us through this as well.
Thank you for reading and praying for our family. I pray everyone who reads this is blessed abundantly and all of you needs are met by our Awesome God! I also pray that you will have true joy, true peace, and true love in your life!
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
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