I hope you all have a wonderful Christmas and thank you for the prayers and the part you play in my miracle!
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Monday, December 22, 2014
Last IVIG treatment
I am sitting in oncology having my final treatment. Tomorrow I go to get a gastric empting scan to see if it did anything for my gastroparesis. I do know I have had more good day than I have had in a very long time. If they decide it is useful I will have to do this every 3 months. If it does not do any good then I am back at square one proving there is nothing doctors can do and then when God heals me there will be no doubt He gets all the glory!
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