I am sitting here in Oncology getting my 4th treatment of IVIG and I really hope it is working. I have been having some strange pain in odd places. I really hope that it's because my nerves are waking up. I met a beautiful sweet spirit of a lady today who was here for IV antibiotics for an infection around her heart. It always amazes me how God brings people into your life and I would love it if you would all pray for her.Her name is Ladonnya. I pray that God pours out blessings on her until her cup is overflowing. I have 4 and a half hours to be here and hopefully I can take care of getting our rental car while ours is in the shop from the damage from the tornado.
I feel so blessed and honored to have now 4 amazing children, a wonderful, giving and loving husband, and it doesn't hurt that he is so gorgeous. I also feel blessed that all the people God brings into my life out of nowhere and at times I am a blessing to them, other times they are a blessing to me, but most of the time we are a blessing to each other.
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
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