My Reason

My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.

Sunday, November 2, 2014

Finally IVIGG treatments

I have finally been approved for my IVIGG treatments. I am not sure what my cost will be but I have to have a gastric emptying study before and after. I will have to go to the hospital 3 days in a row for outpatient IVIGG and then for 5 weeks 1 day a week I will have treatments. I have no idea what my cost will be but the treatments are $20,000.00 a piece, plus my husband will have to take off work to take me to the hospital and from what I understand it takes over 4 hours for each treatment so we may run into lost pay as well, but this is the first promise of help in over 10 years! Anything you can do to help will be greatly appreciated! We hope to start this week and I should know after the first treatment if it helps.
Posted by at

No comments:

Post a Comment

You should be able to comment now. I think I fixed it, my first blog so bear with me.

Subscribe to: Post Comments (Atom)