I started my IVIG last week and I haven't been posting in here but have some in my GOFUNDME. I had my gastric emptying scan last Monday and Started my IVIG Tuesday. The first treatment gave me quite a headache and some strong abdominal pain. The second treatment on Wednesday gave me a massive 4 day migraine along with a low grade fever. Every time I moved it felt like my brain was rattling around in my head. I couldn't even make sense to myself. So I had to postpone my third treatment to Monday and now I will have one every Monday for the next 5 weeks. I hope and pray this is all worth it.
I do know something worth mentioning, through all I have been through God has used me in many peoples lives. It baffles me and exhilarates me to know that even now God is using me. When people come to me and tell me about something I shared with them and how it changed their lives I am so honored to be the vessel God uses to change lives. My amazing husband has the same gift only to watch God work through him, it's so much more powerful. I am thankful to say God uses our children in many amazing ways. Noah is a full time Youth Minister and soon he will be married to his sweet beautiful fiancee. Hope leads the FCS at school and sometimes feels like she is doing no good. But I see her heart and know she makes a difference wherever she goes. The holidays are coming up and that really brings out Hope and Elijah's giving spirit.
My pain is getting very strong right now but I really hope to keep up my blog better.
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
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