This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, April 22, 2014
Day 461
I have been awake most of the night so I decided I would catch up on some Bible reading and praying the Scriptures. The final one I went to was Proverbs 31. Long ago I memorized Proverbers 31:10-31 and have strived to be the wife of noble character. This time I started with verse 1 and I remembered something I was told long ago. Since the chapter is 31 and it has 31 verses then it has a specific verse for everyone's birthday and when I got to verse 8 even though I had read it so many times before, it blew my mind. Open your mouth for the speechless, In the cause of all who are appointed to die. (Proverbs 31:8 NKJV). I have long said I want to be a voice for those who have none, who have a rare disease that doctors either don't understand or care to help. I have heard more times than I can count, "There's nothing I can do for you." I have also heard that I must be lying or that I was just a drug seeker when I abhor drugs but endure the ones I must to give me some semblance of a life. So whether the Proverbs 31 verse of your birthday means anything to you, mine means the world to me and it took me until now to even begin to understand it. God is so creative, if you don't believe me look at this majestic world, look at a zebra, look in the mirror! It's so funny how He can use His very word to show you the why to it all. I get it, do you?
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