This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
Monday, August 22, 2016
Healed and fully Surrendered
I am still working diligently on my campaign against violence, which is needed now more than ever. I am beginning to work on my book that God has given me through His miraculous Healing Power! And now is the time to set up my Testimony at all the churches who took the time to pray for me, to let them know God hears their prayers and is the same Miracle Working God of the Bible this very day! As you can see from the little I have written I am going in a million different directions but Thank God I have One Director and He will put everything into place and His timing, Just like He healed me in His timing! There is so much more I want to share with you, but my timing is not God's timing so for now just know He has very big plans and I intend to follow them step by step!
Know that as you read this I am praying for you! Praying that god will meet you where your needs are! Praying that God will open His Will for you, to you! Praying that God will bless you beyond measure! Please continue to pray for me that God will use me according to His Will!
Tuesday, July 26, 2016
Who is God?
Saturday, July 23, 2016
Day 38 after healing!
We have a very busy day today of shopping, getting our school room ready, and a birthday party so I suppose I should get to it. I will try to do better to keep everyone up to date and I will post dates and locations on here of when I go share my testimony so everyone who wants to be there can. If you would like me to come and speak just leave me your info and I will contact you ASAP! Thanks so much and I continue to pray for all of you and will work hard to be a voice for those of you too weak to speak up for yourselves! This is Day 38 after my healing!
Tuesday, July 5, 2016
15 days after healing
It will take a while to get my energy to a normal level. I have been sick and mostly laying down for the last 10 years. The amazing inner strength I gained from my healing needs help with rebuilding my muscles. So I will take it slow, or I will over do it and then rest a while. Either way slow and steady wins the race. I will indeed try and keep up and I hope you will continue to follow me! May God bless you and your family!
Friday, July 1, 2016
Clarification
Let me start by saying I am so blessed and so full of Joy. I said some things on day 4 after healing about several different people. Different instances and situations that saddened me because there are people who will never understand the Love of God. But I should not have let those words ever be posted. My sister, who has taken me into her home and though she lives so very far away has always wanted the best for me feels like everything I wrote was about her. She knows the Love of God intimatly and has personified it to our family. I am healed but being heavily medicated and without sleep is not a good time to post anything. I deeply apologize if I have upset people or hurt anyone. That was never my intentions.
Sunday, June 26, 2016
Still Healed, still a long way to go. Day 11 after healing!
It is very early in the morning and I have not gotten any sleep so I am probably not making much sense so I am going to go for now. Just want to keep the dialogue going so you will know I had an honest to goodness miracle that I knew all along I would. This blog is Countdown to Healing and I remember thinking how great it would be when I could start to count up the days, weeks, months after healing and Praise God it is finally here and I couldn't be happier!
Sunday, June 19, 2016
Day 4 after healing
The night before radiology was going to take out my line. I cried tears of such sorrow, believing how someone so close to me could be so cruel. I mean, at least they could have pretended to say they were praying for me, anything. Instead, they showed their true colors, they don't give one iota about me. They are cruel and selfish to the core. This was not something they could run in and get the glory for so they blatantly ignored me. I have fought so long to try to make them love me, and my daughters heard how ugly they were to me at my Daddy's Memorial. I cried then as I do now, knowing I would have to let them go. I cannot make someone love me and I shouldn't have to. So, after all is done, I will likely never see them again, and so I cried. The next night, the night before the surgeon was to remove my line, I had nothing but tears of joy, knowing what was to come. Sorrow preceded a failed procedure that if one more cut was made, the line would have been lost in me, the surgery much more invasive, and the fear of part of my line lodging in my heart for likely a long time. But, thank God, they had the wisdom to stop. The next night tears of joy preceded a successful surgery and a complete healing, restoring. God gets all of the glory here! Thank you for reading, sticking with me and beliving. Your prayers have kept me going all this time. God will surly bless you! Don't worry, there is so much more to come!
Saturday, June 18, 2016
Home, Healed, and forever changed!
Here we are today and I know beyond a shadow of a doubt I am healed. God has heald me just like He promised, in His time, in His way. Thank You God, Thank You God. My countdown to healing has met its date. Wednesday, June 15, 2016. I started this blog a while after I got sick, really, really sick. January 20, 2013. My little baby boy believed God for my healing and used every wish and prayer for me. Now I can be the mom he deserves. No more too sick to help, or him making sure no one wakes me because he knew I needed to rest. Everything changes now. It will take time to regain my strength but I am restored! Praise God! I am healed!
Saturday, June 11, 2016
What happened
Thursday, June 9, 2016
From an ICU bed
House but thank God they were in his room. I called Johns mom to come over so I could take my pain medication. I took some medicine and it did no good. The whole time she was there she prayed over me for complete healing and nothing less. When the ambulance got there most of my systems shut down. My temperature was 107.2. They took me to St Francis where I was left in the hall screaming in pain and losing consciousness off and on. I was there for over an hour when the ambulance driver found a bed at Glenwood ER. I waited all night for a room in ICU. There they found my kidney function where low along with my other systems. My heart enzymes were elevated and because I have a family history of heart disease they wanted to do a heart cath but because my platelets were low they're going to do a chemical stress test. We will see where we go from here. Thank you for all of your prayers and love.
Wednesday, June 1, 2016
Life is so fragile.
Thursday, May 26, 2016
Loss
Saturday, May 21, 2016
Starving for pain
Some people say if eating makes you so sick then stop. Could you? If you hadn't eaten a bite for weeks and are as surrounded by food as we are in America, would you continue to starve or eventually give in? Everybody has different strengths and weaknesses and almost every case of gastroparesis is different. But we all have this in common, we are starving, literally starving to death surround by the best food in the world. So what do we do? We eat. Eating doesn't just cause nausea, your whole body rails against you. Even with all of the medication the nausea is so strong and every inch of your body hurts, it can even bring on Migraines. The pain is so strong. You can go from having a flat belly to looking like you are 8 months pregnant within a few minutes. You throw up everything you ate. Often so hard that you pull muscles, pee on yourself, and my personal favorite, heart palpitations. Even after you throw up the symptoms stay and the pain gets even worse. You ask yourself why you were so stupid to eat. Why did you do this to yourself? But eventually, you start to feel better and the hunger returns. That is the best way I know how to describe gastroparesis.
Sunday, May 8, 2016
Mother's Day
Mother's Day is not quite the same when your mom is gone. But I am extremely blessed and I couldn't ask for a better Mother's Day gift than having all of my babies with me. The only thing better than that is that it will be Krystian's very first mothers day as God creates the teeny, tiny life growing in her. I can't help but remember my first Mother's day when Noah was growing in my tummy. I pray that I will feel well enough to thoroughly enjoy my family as it grows.
My Granny is such an amazing role model for me, for so many "adopted" grandchildren. She has so many grandchildren and great-grandchildren that it is hard to keep up, But our Riley will be her first great-great-grandchild. She has so much inner and even in her 90's outer beauty. I am so honored to have my Granny. She is such a Godly woman, so full of grace and love. While thinking of my grandparent name I said that I could never be Granny because those are some huge shoes to fill. While visiting her, I explained that I was unsure what I wanted to be called. I told her why her name so very special and she prayed over me and bequeathed me the name Granny. I feel so honored and blessed.
I should try to get some rest so I can thoroughly enjoy my wonderful, amazing, sweet, playful, loving, wonderfully weird family. I pray you all have a blessed Mother's Day!
Betsy
Tuesday, April 26, 2016
April Showers Bring Ma...Major Changes
I am so sorry I have let my blog lay silent for so long but I cannot stay quiet any longer. God is doing huge things in our lives and I have a feeling my FaceBook and Twitter are going to blow up because of it. First and my most important priority, Hope is Graduating Valedictorian at SHS and if you are reading this and we need to send you an invitation, mostly for the beautiful pictures, I seem to have lost all of my extended family and dear friend's addresses and could really use some help. You can send them privately to my email, thebetsybabe@gmail.com. I am counting on you for helping me please take a minute while you are reading this to stop and do that. I know if I don't do something like that right away I am going to forget. I will also need them for baby showers coming up for my first granddaughter. I know, I can't believe it either, I am going to be a Grandmother! I suppose that means people need to stop calling my daughter my sister, Nah that's okay. God woke me up about an hour ago so full of excitement so I know it's more than graduation coming up. If you want to know more, you're just gonna have to keep up and so am I!
My illness has really been beating me the last several months. I have missed days, even weeks, but I have a feeling very soon that God is finally going to beat my illness once and for all. By the time I started my iron infusions, every week for 8 weeks, my iron level was at complete zero. They don't normally do a bone marrow biopsy when the only red flag is low iron but because most of my other bloodwork was just above or just barely below the bottom of normal range Dr. Gallahager asked if we could do one. That biopsy showed that my iron was at zero, complete zero, which explained why I was sleeping two or three days at a time and having severe muscle cramps and other issues. I don't know how I was functioning at all along with my pain, nausea, vomiting, migraines and all of my other symptoms; bur by the grace of God! Due to my iron being at absolute zero, my bone marrow had small striations or lines of scars, because my bone marrow was working so hard to make my blood without iron. I had no idea what the side effects were like rapid weight gain and swelling of the face, hands, feet, legs, and arms along with others. Anyway in 8 weeks I blew up like a balloon gaining 30-40 pounds and feeling the stretching of my skin in all of the places I am still swollen.
On top of that, I decided to go back to school online in business. It is not going so good with all of my sleeping and other issues with my illness. Pray that I finish this semester strong, please. I have a huge list of assignments due this week, but Hope is my priority right now.
I pray everyone has a wonderful day and as you pray for me, know I am praying for everyone who reads this that God will meet you where your needs are! I can't wait to see what God is going to do today! Can you!
Monday, March 14, 2016
Long time
I know it has been too long since I have posted on here but I have been to sick to do anything. Just letting you know I am still here and still going to change the world with my mirical
Saturday, January 2, 2016
Kim
I know Kim doesn't want me to place this post and that is exactly why I am posting it. Clint's oldest sister Kim had really been a rock for me the past difficult months. If she sees my house needs to be cleaned she just does it, no point in arguing with her because she is just going to tell me I need to save my energy to enjoy my family. I have been so sick for so long that I cannot remember what it is like to be well. If I am resting, she will come keep Elijah company until I can get up to teach him or until Hope comes home. Clint, Noah, Krystian, Hope and Elijah are my family but we are so tight knit they are my best friends and I have to put Kim in that intercircle of best friends. I know people have issues with her and it's not up to me to say how she is with anyone else. But she is my friend, my confidante, and probably my biggest advocate as far as letting people know what I have and she sees day in and day out how I am feeling and it just makes her heart smile to know when I am having a good day.
All of the sudden as in yesterday there is not an inch of my body that does not hurt, inside or out. I have no idea what's going on with me but my sweet Clint is trying to get me to sleep as much as I can but everytime I wake up, it feels like I have been thrown off a building time and again,. From my relentless migraine to what feels like bleeding and bruised organs to my skin feeling like fire ants are crawling under my skin. I am taking my nausea and pain meds around the clock and it just feels like I am throwing dust in the wind. Even Kim's Christmas cards contained information about my rare disease. Autonomic Autoimmune Neuropathy or AAN causing my gastroparesis, my gallbladder to stop working, and even when I was a child causing my appendix to have recurring appendicitis until I was 12 and had to have an emergency appendectomy. That is what this wretched disease does, causing my organs to quit one by one, the newest being my small intestines. I still know with all my heart God is going to heal me in His time and His way and I know he is going to use me as a voice for the voiceless, as an advocate for these health issues doctors either overlook, or don't want to deal with. I want to empower the patients, but I also want to set up a program that trains doctors in the treatment and signs of these rare diseases. I can only hope, you, all my friends, family and aquantices will help spread the news. That young girl that didn't have any body shame but now can't stop herself from throwing up, don't automatically assume it is an eating disorder have a gastric emptying test and if that shows up normal then and only then should you treat it as an eating disorder. Young people don't know why their body does what it does and they need their parents to first see if it is a medical issue or an eating disorder. Eating disorders are very real and can be very harmful, even sometimes leading to gastroparesis but please rule that condition out first.
I cannot type anymore because my hands even hurt so bad. Please pray this is something my body can get over.