This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, July 26, 2016
Who is God?
I believe what I believe because the Southern Baptist Convention told me... No, I believe what I believe because I know God personally. I try to talk to Him every day, throughout the day. I sit and listen to Him. He taught me how to love, how to fast and pray. He taught me through my cookies that Matthew 4:4 says "Man shall not live by bread alone, but by every word that proceeds from the mouth of God." Then through my disease He taught me true hunger, to the point of starvation. Then He taught me to hunger for Him. He showed me a thirst that couldn't be quenched, a thirst complete with dry cracked lips and dry skin. I couldn't tell you how many times I was dehydrated. Then He showed me Living Water that could quench any and all thirst. He showed me such compassion through His creation. Doctors, nurses, friends, family, and even strangers. Then He showed me the cruelty of man, even people who took an oath that were supposed to be there to help me. I want to protect others from that cruelty. Those that cannot protect themselves. He also showed me the #faithofachild. He showed me through my own sweet child what true faith is. Elijah not only gave every prayer and wish that God would heal me, but he also taught all of his friends how important prayer is by asking them all to pray for me. He showed me He is my Jehovah Rapha, My God Who Heals. That to this very day He is the God of miracles and in doing, answered Elijah's and all of his friends prayers! He answered prayers across the world for me. He taught me what true love and devotion is through my amazing husband that He created for me. Clint stood by me through it all with such grace and constantly sang my praises. He put me on a pedestals and adores me to this day. Through Noah, He taught me the first love of a mother and gave me someone else to live for, to never be selfish again. He showed me how He saw me as His child. Noah saved my life so it could truly begin. Now Noah is all grown up, married, and about to have a child of his own. He is a mighty warrior of God. Through Hope, he taught me just that, hope. She was our Hope before she was born, hence her name. From the first time she pointed out her guardian Angels to me, to this very day she inspires me. Elijah still remembers being in Heaven with Jesus, and really remembers being in my tummy. I am so glad I spent the first year of his life mostly holding him, watching him, and loving him, because he didn't get to know the mom I was to Noah and Hope until now. Right now God is teaching me how to be a voice for the voiceless, how to give, how not to give, how to love with Agape, love that asks nothing in return. God is all around us. My Nanny always took us on walks and showed us God in nature. My Granny always showed us God in person. My brother went to be with God too early, and through that God showed us Peace without understanding, sometimes day by day, sometimes hour by hour, and sometimes moment by moment. God is everywhere, just look around, or close your eyes and listen. He wants you to know Him. He created you and this beautiful world you live in. God is Love!
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