This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Thursday, February 13, 2014
Day 395
I have been having so much pain lately and I cannot seem to get any of my symptoms under control. I just found out that now that I have my insurance straight and I can finally go to Maui, that was a mean autocorrect. Of course I can't go to Maui what I typed was Mayo. Anyway now the wait list is so long they have closed it so now I have to find some other option. This is driving me insane. I am going to discuss trying to get into the research section of the autonomic clinic at Vanderbilt. Atleast it is closer and if I can get in on the research side that would be amazing.
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You should be able to comment now. I think I fixed it, my first blog so bear with me.