Tomorrow is Wednesday the 25th and I know with every fiber of my being that God's blessings are going to be poured out on our family. I can't wait to share as our cup will run over. Our family is so blessed and we will never take for granted all of the blessings God has and will bestow upon us.
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Tuesday, June 24, 2014
Day 525
Sorry it has been so long. I am having some serious medical problems that the doctors are not taking very serious. My home health nurse was very upset when she heard what I was going through but my GI still just wants to put in a peg tube. One of the top Gastroparesis doctors told me years ago I was not a good canidate for a peg because I have no motility in my stomach or small bowel. I know this is pretty serious because I have been throwing up "coffee grounds" basically blood and stomach and esophagus lining. I have also lost 15lbs in a week and a half. I want to get this unnecessary weight off but I know that much that fast is not healthy. My nurse was concerned how pale I was and that my blood pressure that usually runs low was high and my pulse was high. If I just go to the hospital here I know they won't do anything.
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