Day 488

I feel very blessed today. After my visit to the pain clinic they set up an appointment to do target point injections and I am really hopeful that will help get my pain under control. I go to the GI doctor Tuesday and I really hope we can come up with a plan to get my nausea under control. Since my main doc is no longer seeing patients I have to find someone to take care of my migraines.  I am also very hopeful that I am going to be able to launch a spotlight for those with rare diseases and create a website with my computer genius hubby's help to open a non-profit and eventually reach the world stage to help researchers, doctors, and patients to work in conjunction with one another in a way that is much more simple. Hopefully to cut through the red tape and years of doctors saying either I can't find anything wrong with you or there is nothing more I can do for you.
On another note I am so excited the kids are getting out of school! I feel my life is full when my house is full with all of my babies, and I can't wait for our visit from Misty!!! I really hope this summer we will get an opportunity to visit all of my brothers and sister and family!
I go to the neurologist in July and really hope he can get to the bottom of my underlying autonomic dysfunction. I am so ready to stop just being and get to truly living. Then I feel like I can really help others with rare diseases. Everything I set my mind to before I got sick, whether creating my own line of cookies, perfecting my Christmas candy, teaching pre-k 3, homeschooling, being a personal banker, whatever the task I always pushed myself to be better than the best. I know all of that was by the grace of God alone and I also know that by the grace of God I will be able to fulfill His will in changing the way the world looks at sick people that don't look sick. I know I still have a long journey ahead of me and I pray I will glean ever lesson, every pain, everything I need to teuly make a difference in this world.