This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Friday, April 26, 2013
Day 97
Just to show you how gastroparesis works, yesterday was a good day and today I bloated up so big I couldn't twist or bend or barely move. I really thought my stomach was going to burst open. I explained to my family I felt like the little girl on Willie Wonka and the Chocolate Factory that chewed the whole meal gum. I have to say that didn't help with my pain and soon the migraine followed. One day I feel so alive and the next I wish for the latter. There is no rhyme or reason to how it works and that is why it baffles so many doctors and many doctors don't want to have anything to do with it because it leaves them scratching their heads and most doctors want to be able to help not say there is nothing I can do for you. I am going to try and get some rest and hopefully will be back tomorrow.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment
You should be able to comment now. I think I fixed it, my first blog so bear with me.