I know God worked a huge miracle in me when he healed me of my genetic disorder, but do you know He cares about the little things too? For some people those "little" things are huge! I know before God healed me, he sustained me. He gave my family the strength they needed to get through every obstical. It's those little things every day that add up. We may need a little extra energy to get through the day because we didn't sleep much the night before. We may have a cut on our hand that needs to heal quickly so we can wash the dishes. Maybe you don't have enough money to put gas in your car and you need that gas to last a day linger than it normally would. God cares, no matter how small or large you problem may be! He will help you! All you have to do is ask! We often try to come up with a natural explination for the supernatural. But God is still the same God He was in the bible. Even then people tried to explain away the mighty and seemingly small things He did. But if you have faith, true faith, He will meet you where your needs are in a supernatural way. When people try to explain it away, just smile and know in your heart they tried to explain Jesus away and still do. Our faith allows God to work which in turn strengthens our faith! Wow! That's pretty awesome!
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
Sunday, June 4, 2017
Friday, June 2, 2017
Busy Times
Friday, May 12, 2017
Just Amazed
I am so proud of my oldest son, Noah. He is about to graduate from LA Tech as a Biomedical engineering! But that's not all, he will be going to get his doctorate while getting paid to go to school. God just amazes me how He works through things! My illness and the way it was neurological propelled him into the position he is in right now. He eventually wants to have his own research lab and find a much less invasive way to diagnose autonomic and neurological disorders and gastroparesis. I believe with all my heart and soul that God is going to use my children in a mighty way! I have always been so proud of my sweet Noah, even though he hasn't always realized it. He is very hard on himself. He tends to push himself to expectations that no one could possibly meet and often exceeds them. But when he doesn't he is so hard on himself. I think by now he knows how much he is loved and adored. He can see that in his baby girl. I just hope he realizes how many people feel the same! I feel so honored to be his mom and have played a part in making him who he is. I know God made him fully who he is but I thank God for letting me be his mommy! My little man is all grown up!
Friday, April 21, 2017
What starving looks like.
I get it, really I do, when people say, "you don't look like your starving to me." You see, that's the cruelest joke of all. I know you've all seen the images of the starving kids in Africa with their bellies distended. Starvation goes so much deeper than being tiny. I was tiny for a while. But your body goes into a mode where your metabolism halts, and it holds on to everything down to the smallest lifesaver. It continues to cannibalize your bones and muscles and turns them into fuel and fat. That is why starvation diets never really work. Well, in my case, being on complete IV nutrition after years of starvation and dehydration was a recipie for extreme weight gain. The doctors didn't care about my weight because they were focused on my blood work and if I had extra weight on me it would be beneficial in the event that the TPN shut down my liver which it was prone to do. So your body processes all the fats and sugars pumped directly into your heart differently. My body already held on to everything but this was much more. So I got larger than my top pregnancy weight and I didn't even get to enjoy what was making me fat. I spent a good 6 months after my healing simply regaining energy to do simple things. Though I have lost 35 pounds I have a long way to go. I tell you all of this to say, don't judge someone by the way they may look. Medication and illness can do strange things to the body.