After the past couple of days I spent this entire day sleeping on the couch and to be honest I am ready to go back to sleep now. I was so glad to spend all of Tuesday out with all of my children and all of Wednesday out with my girls. Shopping yesterday made me realize I cannot wear what I used to. Hope and I tried on the same dress but I knew when we walked in the store it was for Hope, who mentioned for the first time, "Man, I really am a teenager." After that I realized I am pushing 40 fast. But I have to say it doesn't bother me when people think I am 23. Noah is getting his senior pictures tomorrow so I guess that means it is time to gather everybody's addresses. Hopefully my sister has them from her boys graduation. I am going to go now because I have a migraine and I feel like I am not making any sense.
Lots of Love
And Laughter,
Betsy
This is my journey to healing from a rare and ugly disease. I hope to be an advocate for all rare diseases that are often misdiagnosed or worse left to think it is not real.
My Reason
My sweet Elijah has used every wish, every prayer, every day to ask for my complete healing. I knew in 2008 because God told me when I first started getting really sick that things were going to get much worse but He would heal me only when His timing is right and He receives the glory for my healing. For those of you that do not know, I have Idiopathic Gastroparesis caused by a genetic condition known as Autonomic Dysfunction. I am currently on IV nutrition through a central line and on several medications. I had a gastric pacer implanted in 2010 to alleviate some of my symptoms and it worked well for 6 months but my nerves quit responding and I finally had it removed this January. In other words it did get much worse. I start this blog now because I know God will not let my baby's faith die.
Thursday, March 28, 2013
Wednesday, March 27, 2013
Day 67
After yesterday and today I am so wiped out. I had to go take care of insurance and find dresses for Micah's wedding. We had fun but a bit to much. Halfway through the mall my body was given out thank goodness Dress Barn came to the rescue. I just hope it doesn't take too long to recover. For a little while I was having a blast with my Hopie and Krystian. I didn't even think of myself as being sick until it hit me all at once. I am very tired and weak but I do have more amazing news. I got a call from the Mayo Clinic in Jacksonville to set up my appointment. That was so fast after such a long time of fighting and pushing and shoving trying to get any help. The moment has arrived.
Tuesday, March 26, 2013
Day 66
This has been a very tiring but very productive day. I went to the doctor first thing this morning and he got all my medication straight, got my TPN where it needs to be, got me an appointment with another local doctor that hopefully will help me my other medical need, and got me a call from Mayo Clinic in Jacksonville to start that process. I was able to go to Walmart and get some supplies and go get Noah's shirt for the wedding. I will sleep good tonight. Needless to say I am tired and a bit out of my mind tonight but I wanted to share the good news. I hope y'all have a wonderful evening.
Lots of Love
And Laughter,
Betsy
Lots of Love
And Laughter,
Betsy
Monday, March 25, 2013
Day 65
I am so happy to have my kids out for spring break and a little sad knowing that Noah's senior is winding down to an end. My little man is about to leave the nest and any mother who has gone through that knows its not easy. Elijah on the other hand looks it as a place to put his toys. The child doesn't sleep in his own room so it is basically a play room anyway and he honestly thinks he is going to get another play room. I go to my normal doctor tomorrow. Hopefully we can get my meds straight and get some of the calories out of my TPN because I keep gaining weight, which by the way really sucks because normally if you gain weight it's because you enjoying some really good food, not having what smells like baby formula put in your veins. I am also going to ask him to write a referral to Mayo for my insurance. Hopefully if they get it from 2 sources they will allow it. As far as Mayo goes if anyone has any ideas for fundraiser I would appreciate all the help I can get. I have put together several fundraisers and even got media attention for people in need that grew into an amazing fund but I just don't think it is right to do anything like that for myself. As a side not to that we did just watch Here Comes The Boom and I really don't want Clint to get into MMA. He has always wanted to be a wrestler and he may very well have gone down that road if he didn't meet me. He passed on that love of wrestling not to our boys though he tried hard, instead he passed the love of wrestling to our daughter. On a totally different note next weekend my baby brother is getting married in less than 2 weeks so I hope I have the energy to go shopping for a dress. I really enjoy writing my blog and I hope you enjoy reading it. I have so many more wonderful life stories to tell and I hope you will stick around for them. Until then...
Lots of Love
And Laughter,
Betsy
Lots of Love
And Laughter,
Betsy
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